Patrick Quinn, whose personal battle with Lou Gehrig’s disease helped power the Ice Bucket Challenge fundraising campaign, has died aged 37, seven years after his diagnosis, according to the ALS Association and his supporters on Facebook.
Quinn, who was born and grew up in Yonkers, New York, was co-founder of the campaign that raised more than $220m for medical research into amyotrophic lateral sclerosis (ALS), more commonly known in the US as Lou Gehrig’s disease, or in the UK as motor neurone disease. Quinn was diagnosed with ALS on 8 March 2013.
The Ice Bucket Challenge went viral on social media in the summer of 2014, when people around the world posted videos and photos of themselves dumping buckets of ice water on their heads and challenging others to do the same while urging donations for ALS research.
Among Quinn’s many honours for raising awareness of ALS and promoting research was a nomination with fellow ALS activist Peter Frates as Time magazine person of the year. Frates died last year aged 34, seven years after his diagnosis.